The Shocking Truth About This Special Needs Mom

I’m greedy. It’s true. In the beginning I would sit in the hospital at night and cry in exhaustion and terror over what was happening to Gus.  I just wanted to get off this crazy merry-go-round.  There were years when the hospital’s ER door was as familiar as our own front door, and it seemed like Gus was constantly being admitted for one malady or another.  We would get home, get settled, and go back to be re-admitted.  I would have given my right arm to spend a month at home without an admission.  Gradually, the years passed and theRead more…

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“We cannot imagine life without it!”

  Francesca’s surgeon recommended Gus Gear’s central line wrap to her parents while she was in the hospital.  They contacted us right away and she has been using our central line wrap ever since. (You can see it in the picture if you look closely) Here are some thoughts from her parents:     “After having a line break in the hospital, we realized we needed better protection for our then six-month-old’s central line. The central line wrap protects her line from breaking and it also protects the Broviac dressing. We had been doing bi-weekly dressing changes because the dressingRead more…

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5 Things Every Special Needs Parent Should Know

       The road of a special needs parent is quite simply paved with potholes.  Along my journey with my son, I have fallen into many of those potholes, but I’ve also learned a lot – about people, patience, and mostly about myself.  I’m far from done grasping all that my son has to teach me, but I have realized how profoundly this experience has changed me and what it has imparted to me so far.  This is what I wish someone had told me when I first started down this very bumpy road.          Read more…

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